• Conversations with myself: 2005-2006

    While doing a big administration clean up, I came across some old notebooks. The one that caught my eye started on June 5th 2005, and lists MS, professional, friendship and relationship woes as I was diagnosed just two months prior. … Continue reading

  • Making Sense of MS

    One of the many things people newly diagnosed with MS (PwMS) look for is information on what their illness will have in store for them. From thinking back to when I was discovering what MS might be like, I remember … Continue reading

  • Resilience

    “Most of all, though, I had once again come to the realisation that I unfortunately need more sleep than the average, healthy person. At this stage so, I must start considering my continuous fights against tiredness and “forgetfulness” about needing a lot of sleep, as a pure character flaw.

    Perhaps I should also consider this forgetfulness a deliberate act of personal terrorism because who doesn’t like being busy? Who doesn’t like being able to get up in the morning and continue to work and stay awake for the next 12+ hours without falling asleep after 2 hours?” Continue reading

  • Ten happy MS years

    A milestone like no other. A curious, strange one indeed. Ten years of living with MS. Ten. In fact, ten years and one week. Reality suddenly became a very different kind of living. As strange as it sounds, it became … Continue reading

Lifetime membership

Silver imageRuth Humleker, a profoundly political, strongly opinionated and utterly fearless woman once said, “I can change only myself, but sometimes that is enough.” With her words often on replay in my head, I think back to that day.

Yes… t-h-a-t day in April 2005.

Diagnosed. Officially a lifetime carrier and member of a band called multiple sclerosis. Question is, what will you do with that membership? Use it? Abuse it? Throw it out?

As it turned out, soon after t-h-a-t day, I knew I would be using this broken vehicle as a tool of some sorts, perhaps to help others. And yes, yes… you can stop whispering “anyone but yourself!” Continue reading

Positive MS News: November 2014

Image of hopeAs an MSer, you always hope. Perhaps you dream big, and you wish for a cure. Or you pray for a new form of medication to tackle your most annoying symptoms. In my case, I literally ache for better trigeminal neuralgia treatment before having to resort to surgery to numb or destroy the trigeminal nerve in my face. I also hope that one day, my severe fatigue will be something of the past by having medication that will keep me alert, awake and active without having nasty side effects.

Hoping for a cure? Of course. I am realistic though, as it might not happen in my lifetime. Simply being part of the solution, is all I wish for right now. Whichever comes first, the 8,000 people with MS in Ireland, 100,000 in the UK, 400,000 in the US and many other people around the world are looking forward, and simply… hope. Continue reading

#BandAid30

Do you sometimes think, “Thank god we’re lucky we’re born on the right side of the world, and the right side of the equator”? People on the wrong side, in West Africa, right now, are dying a horrific death, sometimes all alone.

Some days you wish you had a lot of money in your wallet and bank account just so you can spread some peace around your neighbourhood, friends and family. As a lifelong supporter of the Irish MS Society, a few animal welfare organisations and giving the few Euros left of my meager invalidity pension to homeless people in town, I am all for charity.

My eyes did see my eyebrows frown however when I heard that our own Sir Bob Geldof, born and raised in Dublin, was waking Band Aid from the dead. Again. “How many times more?” was my first reaction, and “I’ll send my money straight to Africa, thank you very much.” Continue reading

Ireland Blog Awards 2014 finalist certificates

Happy days!

The certificates of the Ireland Blog Awards 2014 finalists arrived today so I can now frame them and give them a nice place on my walls.

I want to thank everyone once again for voting me in, and for the continuous support. Without sounding too cliché, I would not be able to keep on writing if it wasn’t for all the good intentions, friendship and love you’ve given me so far.

Image certificate Blog Awards Continue reading

12 years of chasing Irish poetry, books & dreams

12 years ago, on this very day, I moved to Ireland. Sometimes it still feels like a dream within a dream, of seeing, hearing and feeling new stories, of meeting wise and old, playful and young. Many stories have ended up here on my blog, so please do check the menu above.

Thinking back, I always have William Butler Yeats in the back of my mind. He is definitely my favourite Irish poet, although it would be an injustice not mentioning the fantastic work of Seamus Heaney, James Joyce’s Ulysses and many others blessed by the Irish gift of the gab. Below are just a few of my favourite poems by Yeats, so do enjoy!

A poem for Ireland:
If you want to vote for your favourite Irish poem of the last 100 years, you can do so here.
https://twitter.com/RTEPoetry
https://www.facebook.com/RTEAPoemForIreland

Continue reading

Positive MS News: October 2014

Medicine DNA Drug

Once again, a lot of research news was published online, with the best headline saying “54 New MS Research Projects to Receive Millions of Dollars in Funding.” In my view, I can only jump up and down like a child at Christmas reading about new research and positive trial results. Even if or when we’re struggling with our illness, we know that lots is happening to help us forward in life.

So please, enjoy the list with research & clinical trial news, updates on current medication and business & general news. Continue reading

Depression?!

Crying eyes

Three weeks ago, Mental Health Awareness Week graced Ireland, hoping to shine a light on  the different kinds of mental illness some people live with. If you spent time on Facebook or other social media during that time, you probably saw pictures float by saying, “Depression isn’t a sign of weakness, it’s a sign you’ve been trying to remain strong for too long.”

While everyone goes through a short time of feeling low at some stage in his or her life, feeling down can also be a symptom of an illness other than depression, like multiple sclerosis. Continue reading

Dear editor… Ebola virus scare in Ireland?

Dear Editor,

Forgive me in advance my wordy concern regarding Ebola, but as an immune-impaired ill person living with a severe underlying condition (multiple sclerosis), I hope this letter will find its way to your newspaper.

What worries me is the apparent lack of concern and immediacy health officials display regarding the Ebola outbreak in West Africa. It truly makes me wonder if Ireland is prepared (at all) should Ebola reach our shores. Continue reading

Ebola… I told you so!

Coloured tem of Ebola virus

Back in August, I wrote about the possibility of an EVD (Ebola Virus Disease) outbreak in Ireland. Thankfully, it hasn’t come to this yet, although one suspected case later turned out to be unrelated. Nevertheless, I kind of feel a “I told you so, didn’t I?” knot in my stomach lately, one I hoped would disappear as more positive news about beating the virus went viral.

But, there isn’t more positive news, and “beating” has turned into “watching hopelessly from the sidelines.” Continue reading

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