• I’m an ex and I’m lovin’ it!

    I used to be a lot of things. Busy. Book addict. Ireland lover. Passionate. College student… and perhaps a tad crazy also. But then friends started saying that I was “slowly turning into a blonde”. Physical discrimination on the basis … Continue reading

  • Branded

    Often, our blogs have taglines. But what if humans did, too? What would your tagline be? When some of my blogging friends urgently emailed me this question as part of a Daily Post, I didn’t need to think of answers … Continue reading

  • Book lovers, unite!

    “I love words, funky ones, cranky ones, utterly ridiculous ones as well as justified paragraphs, intense fonts and long sentences that shout for shortened versions. I’ve been living in Ireland for 12+ years now, and honey, we simply don’t do short sentences in Ireland. Ask Joyce, who once wrote something so flabbergastingly fantastic that he forgot to add punctuation, a sentence of 4,391 words, no less. Molly Bloom must’ve gasped for air once she finished dreaming or thinking it. I am still gasping for air after tackling Ulysses. Talk about kick ass literature.” Continue reading

  • Life’s meant to be…

    Talking down on people’s illness is something I avoid at all costs, as everyone has some cross to bear. Because of other people’s reactions towards my own illnesses, character and lifestyle, I simply know that blaming an ill person for being sick can destroy many things. Whatever people may get up to in their life, never attack them on their weakest point, i.e. an incurable illness they never asked for. It’s low, it’s patronising and it doesn’t speak well of the person doing it. In fact, it says more about the person being this offensive than the person they blame. Continue reading

  • MS: a social disconnect

    Therein lies the disconnect: the way others want me to be, and me not being able to keep up. How many of us have pretended to be well enough to walk another 500 meters? How many say they are OK when they feel pain in their limbs, their eyes and in their soul? How many say they will be able to go to work when they were awake half the night because of pain?
    Unwillingly we are put in a non-self-imposed isolation; we are put there by our illness, and quite often by the outside world. Our mental functioning is now processed differently because of our illness. Continue reading

Books, Ireland and a few blanks

Yeats Sligo

When asked what a review of my life would look like, I’d inevitably request that poetry be added to Smile, by Charlie Chaplin; classical music to moments of newly found strength and that slapstick moments appear in the Odd News paragraph. Neither would offend my sensibilities, as I can pack a good few things in that large, worn suitcase of a weary dreamer, in my mind that is a lost and found lover of the arts, and of course, of books, libraries and any kind of Psychology. Continue reading

10 years: a lot to be thankful for

Inspirational Quotes 4

Ten years ago today, and 2.5 years after moving to Ireland, I was diagnosed with MS, an incurable, neurodegenerative illness that would change my life in ways I never imagined. Needless to say, it was an unwelcome event. Little did I know, however, that it would eventually lead to a life well lived.

There was no manual that showed me how to adapt, accept and live with a chronic illness. MS, associated with 50+ different symptoms, impacts each patient differently. There are numerous symptoms I might never have at all, and that in itself gives hope. Continue reading

I’m only human

images6“I’m only human.”

It’s a phrase we all use sometimes to explain unwanted behaviours and/or consequences. Friedrich Nietzsche would say, ‘Human, all too human’, while I wonder why we simply do the things we do without some foresight, afterthought, or a memory spark that could have shown us how to avoid running into trouble.

My failures or dodgy flaws?

I can be as silly as a young pup, crashing into you or the furniture as I go, have a memory the size of an ant, or simply be as tired as old, worn wallpaper. More than once I ran into myself at lightning speed like atom particles do in the Large Hadron Collider in CERN, and as a result, ended up in hospital in need of IV steroid treatment to get me up and running again. Because of this, my body itself reached the expiry date on steroid use, and it refuses to let it benefit me. In other words, steroids are now a waste of time.

I’m only human. Continue reading

An Introduction to MS

© WVE and Ireland, MS and Me, 2011-2013. Unauthorized use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to WVE and Ireland, MS and Me with appropriate and specific direction to the original content.

Blurred notes to self

10446626_493205107477168_3492364098128049118_nSunday evening, as always a short look forward to the coming week, and a long goodbye to the past three weeks. There’s the usual MS fatigue and some added black-and-white-being-fed-up always having to repeat myself. In other words, today has been, and still is, all about ‘out with the old, in with the new’ but not before letting off some steam.

In a recent post for the blog of the Irish MS society, I used one of my favourite quotes by Lewis Carroll, “I can’t go back to yesterday because I was a different person then.”

I wrote about being a different person pre- and post-diagnosis. Being diagnosed was a super-charged emotional rollercoaster ride, the ride hurdled forward by the passing away of six family members (including my only sibling, Nana and stepdad) the following 3.5 years and by turning single again. Let’s just say that before being able to get up and crawl on my hands and knees, I was knocked sideways again, six times over. Continue reading

Eyes: pure vision

imagesEyes.

We use them to learn, navigate, assess and appreciate. They help our brain understand our environment and sometimes, as peculiar as it sounds, we use them to listen.

Louis Braille, Stevie Wonder, John Milton, Jorge Louis Borges, Galileo Galilei, Eamon de Valera, Johann Sebastian Bach and many others had eyesight issues. Some managed to produce works of pure genius like John Milton did when he wrote his epic Paradise Lost after he became blind at the age of 43 in 1651. He bent a negative event into a positive one, something that many since Milton have done, and done well.

When one or both start being a nuisance, you certainly feel apprehensive. I’ve been wearing glasses since age 6, and contact lenses since age 20. I should be well-used to handling them so, but I am acutely aware of the tricks eyes can, and in fact, do play.

Continue reading

Medical Apps for Clinicians

285x285_Best_MS_Apps_2014_12MS @Point of Care
MS @Point of Care presents valuable information in an easy-to-digest format. MS @Point of Care is a series of chapters and other tools that aid in making informed decisions regarding diagnosis, treatment, and symptom management.
Available on iPhone

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MS Diagnosis and Management
The Multiple Sclerosis – Clinical Care app is designed to be a handy tool for neurologists, resident physicians, and other healthcare providers to aid in the diagnosis and management of MS. Continue reading

10 Useful MS Apps

285x285_Best_MS_Apps_2014_12EDSS Calculator
The Toronto EDSS Calculator helps healthcare professionals and researchers compute the Expanded Disability Severity Score (EDSS) for patients with Multiple Sclerosis. The application facilitates the rapid and accurate calculation of the EDSS using Kurtzke’s algorithm.
Available on Android, iPhone and iPad Continue reading

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