With World MS Day 2015 now gone for another 365 days, I shared a few words yesterday about one of the things I hardly ever talk about in regards to my own MS: the day I woke up without sight in my left eye, and the subsequent fear of permanently losing my eyesight.
We use our eyes to learn, navigate, assess and appreciate. They help our brain understand our environment and sometimes, as peculiar as it sounds, we use them to listen. Continue reading
A war zone. It sounded like a war zone. Sound effects of an AK47 gun amid MRI vibrations and banging noises usually taking place on construction sites. Tinnitus adding an overlay I can miss like never before.
Magnetic resonance imaging is a godsend to ill people. In regards to MS, it gives a clear view on what is physically going wrong inside the brain, spinal cord and optic nerves. Add some contrast fluid, and yours can lit up like a Christmas tree, just like mine did this morning. Or so I was told.
Sudden, loud sounds twitches my head involuntarily. The upstairs part of my body locked in a mask, I now realise how Leo felt when he played The Man in the Iron Mask. Continue reading
For more on World MS Day 2015, check these links:
Twitter – Tweet @WorldMSDay and/or use #strongerthanMS
Facebook – World Multiple Sclerosis (MS) Day
Instagram – worldmsday
YouTube – World MS Day
Pinterest – World MS Day
Neurologically challenged by MS and personally by her will to succeed, Willeke is a disability awareness advocate seeking to improve neurological/MS services in Ireland. By highlighting difficult issues that come with such a diagnosis, she hopes her tenacity can bring some dignity to people most in need of a modern, inclusive healthcare system that looks after every aspect of life.
©WVE and Ireland, Multiple Sclerosis & Me, 2011-2015. Unauthorized use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to Willeke Van Eeckhoutte and Ireland, Multiple Sclerosis & Me with appropriate and specific direction to the original content.
AMYOTROPHIC LATERAL SCLEROSIS (ALS)
ALS is a form of motor neuron disease. It involves the loss of the actual motor nerve cells. The nerves affected are in the spinal cord and those that travel to the voluntary muscles, so there are symptoms of both central and peripheral involvement, with weakness and wasting in arms, legs, and mouth/throat (bulbar). ALS is a rapidly progressive and fatal neuromuscular disease.
MULTIPLE SCLEROSIS (MS)
Multiple sclerosis (MS) is an unpredictable – at times disabling – disease of the central nervous system: which consists of the brain and the spinal cord. The disease attacks the protective myelin covering of the central nervous system, causing inflammation and often destroying the myelin in patches. The severity of MS, rate of progression, and specific symptoms cannot be predicted at the time of diagnosis. Continue reading
When asked what a review of my life would look like, I’d inevitably request that poetry be added to Smile, by Charlie Chaplin; classical music to moments of newly found strength and that slapstick moments appear in the Odd News paragraph. Neither would offend my sensibilities, as I can pack a good few things in that large, worn suitcase of a weary dreamer, in my mind that is a lost and found lover of the arts, and of course, of books, libraries and any kind of Psychology. Continue reading
Ten years ago today, and 2.5 years after moving to Ireland, I was diagnosed with MS, an incurable, neurodegenerative illness that would change my life in ways I never imagined. Needless to say, it was an unwelcome event. Little did I know, however, that it would eventually lead to a life well lived.
There was no manual that showed me how to adapt, accept and live with a chronic illness. MS, associated with 50+ different symptoms, impacts each patient differently. There are numerous symptoms I might never have at all, and that in itself gives hope. Continue reading