Since writing my article about depression five days ago, and my mum’s 7-day visit to Ireland, I feel a shift has taken place in my mind.
I am not 100% there yet, but I am well on my way to finding uncompromising resolve again. Many grand and tiny gestures have contributed over the last 4-5 weeks, and are still willing me forward today. Of course, the backing of friends and family, as well as my medical team definitely helped.
Most of all, though, I had once again come to the realisation that I unfortunately need more sleep than the average, healthy person. At this stage so, I must start considering my continuous fights against tiredness and “forgetfulness” about needing a lot of sleep, as a pure character flaw. Continue reading
Once again, a lot of research news was published online, with the best headline saying “54 New MS Research Projects to Receive Millions of Dollars in Funding.” In my view, I can only jump up and down like a child at Christmas reading about new research and positive trial results. Even if or when we’re struggling with our illness, we know that lots is happening to help us forward in life.
So please, enjoy the list with research & clinical trial news, updates on current medication and business & general news. Continue reading
Three weeks ago, Mental Health Awareness Week graced Ireland, hoping to shine a light on the different kinds of mental illness some people live with. If you spent time on Facebook or other social media during that time, you probably saw pictures float by saying, “Depression isn’t a sign of weakness, it’s a sign you’ve been trying to remain strong for too long.”
While everyone goes through a short time of feeling low at some stage in his or her life, feeling down can also be a symptom of an illness other than depression, like multiple sclerosis. Continue reading
While reading Dan Brown’s latest novel Inferno, I came across an interesting dilemma: in case of a deadly, rapidly spreading global virus, do you sacrifice the few to save the many?
Back in August, I wrote about the possibility of an EVD (Ebola Virus Disease) outbreak in Ireland. Thankfully, it hasn’t come to this yet, although one suspected case later turned out to be unrelated. Nevertheless, I kind of feel a “I told you so, didn’t I?” knot in my stomach lately, one I hoped would disappear as more positive news about beating the virus went viral.
But, there isn’t more positive news, and “beating” has turned into “watching hopelessly from the sidelines.” Continue reading
No, not really.
Oh the irony! That pure, untainted irony that just sits there grimacing at my lack of energy and overabundance of trigeminal neuralgia, today of all days!
“What?” you ask.
You who spends time with me, you know that I often suffer from bouts of sarcasm – I’m still DSF, a Delightfully Sarcastic Female after all. Not only that, tonight I feel cursed. Continue reading
It has been a big and very busy September for researchers, clinical trials and pharmaceutical companies. Early this month, the Joint ACTRIMS/ECTRIMS Meeting took place in Boston. For more, please check the extensive website of the conference. Continue reading
Building further upon my previous post, “What we don’t know,” let’s open the “Surprise!” book of MS. Before you read any further though, I do want to say that I do not have below symptoms all at once, or on the same day. Some are more present than others, or less or more intense. Some happen once a week, others perhaps more.
You probably know by now that my main symptoms are still ridiculously strong fatigue and similar facial pain, so what you will find below is more or less just a slight blip on the radar in the scheme of things. Unless I fall off the staircase of course, which would be rather erm… well… just silly, n’est-ce pas? Continue reading
The MS community is well known for its willingness to talk about their illness. I myself might share more than others might, but that, of course, is a personal choice. Being from a family where I am the first one with MS, I almost constantly feel a need to share, teach and sometimes to explain some differences in opinion on how to live with MS. In that regard, I sometimes have MS things on my mind, but when I go online, I can’t see them discussed in chat rooms or forums.
Take for example brain atrophy. The first time I heard about atrophy was at a MS Patient conference in May. In the nine years of being diagnosed, never had I come across, and never did anyone talk to me about MSers having a faster-shrinking brain. To my very surprise, I therefore learned that in people with MS, brain volume is lost around three to five times faster than in healthy people. Continue reading
I was afraid.
Each time I experienced gastrointestinal changes, I tried not to worry. But I did.
Even when I tried to get this worry down on paper, I failed to finish two consecutive sentences. One sentence if I allowed my interior monologue to perform a James Joyce oration without punctuation.
That was not me however. I usually didn’t let chaos overwhelm me. My path of life had on regular intervals been paved with chaos, so I was well-used to it. Continue reading