• Tiredness ≠ fatigue

    “Yes, I do know how to read calendars and clocks. I even know how to reset the microwave clock when Ireland changes to a new daylight saving time. Please don’t compare your healthy tiredness to unhealthy fatigue, it’s like comparing microwaves to planet Mars.” Continue reading

  • No end to trigeminal neuralgia

    “While I’m sitting here, typing fine long sentences, I’m almost giddy of pain, and the left side of my face feels like it’s being pulled way west in the direction of the Atlantic Ocean. My left eye feel like closing up shop for a week or two, and my brain is slowly being stir-fried. Yes, that is what trigeminal neuralgia feels like.” Continue reading

  • Irish public transport: access all areas?

    “At this stage, I thought “Do I really have to walk with my coffin under my arm to get a seat when I’m physically leaning on a walking stick while holding the handrail as if it was my best friend?”” Continue reading

  • Defined by myself, not my illness

    “As you can tell, I have lots that strengthens me and drives me forward. I also have (dis)abilities: severe bouts of pain and fatigue, which I bent into a positive writing tool for others to lean on. My limitations serve as other people’s motivation. Their motivation became my inspiration.” Continue reading

  • The sorry state of neurology in Ireland: one year on

    “Governments past kept on suffering from their own kind of neurological illness, i.e. selective memory loss when these services so clearly demanded upgrades.” Continue reading

  • A powerful letter to my MS

    “You made each of us different. MS has 50+ different symptoms, and multiple sclerosis just wants you to go through it alone. I never asked for you, I never wanted you so I sure as hell want you gone. For good. But I figured you out though.” Continue reading

Death: a fearful thing

2008

I was afraid.

Each time I experienced gastrointestinal changes, I tried not to worry. But I did.

Even when I tried to get this worry down on paper, I failed to finish two consecutive sentences. One sentence if I allowed my interior monologue to perform a James Joyce oration.

That was not me however. I usually didn’t let chaos overwhelm me. My path of life had on regular intervals been paved with chaos, so I was well-used to it. Continue reading

Featured On page updated

Interested in reading more? Check out the Featured On page on my blog with links to guide you!

Featured On

© Willeke Van Eeckhoutte and Ireland, Multiple Sclerosis & Me, 2011-2014. Unauthorized use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to Willeke Van Eeckhoutte and Ireland, Multiple Sclerosis & Me with appropriate and specific direction to the original content.

 

MS in numbers

brain-illustration3

Because not every country has a MS register yet, it is difficult getting exact figures about how many people have MS. This means that some figures are estimates only. While the numbers below (taken from different websites), may sound frightening, it’s important to focus on the good. Continue reading

Please help keeping the writer of this establishment caffeinated

D67E67A2-A1D9-4ABE-9D93-2E56390189F0-24007-00000188775ACDFBAh ladies and lads, you know I can be a bit kooky at times; hell, I can even get a little annoyed as well when things don’t go my way. I therefore won’t do it on this page. At all.

Where others might ask for the price of a pint, I don’t drink alcohol, so I won’t fall down on my knees begging you.

I also won’t fall down on my knees asking you for a donation of the price of a fag, as I don’t smoke. Continue reading

Big pharma’s friendship

It’s not like it was ever meant to be. I lived an almost frugal life, not in a penny-pinching kind of way but willingly not accepting any chemical products in my system. No cigarettes, no alcohol, no mind-altering hard or soft drugs. You get the idea, straight edge, but without the punk attire. With the help of my family’s diet, I lived a very healthy lifestyle, that much is true.

So what went wrong? How do you become the owner of a chronic, neurodegenerative illness nobody in your family has, despite the supposed genetic predisposition people with MS have?

Did I stress too much in my adult life?

Did I have a difficult childhood?

Did someone else in my family have MS without them being aware of it?

It’s hard to know when the cause of an illness is yet unknown to research scientists. Continue reading

Positive MS News: August 2014

 

gene-that-controls-nerve-conduction-velocity-linked-to-multiple-sclerosis-neuroinnovations

August 2014 has been a great month for people with neurological illnesses, as they finally saw their type of illness broadcast, and indeed, doused by ALS ice bucket challenges.

To quickly place ALS amongst other neurological illnesses, perhaps the most famous person with ALS is Stephen Hawking, a person hero of mine since my teenage years. ALS, also called MND (Motor Neurone Disease and Lou Gehrig’s Disease), is similar to multiple sclerosis, and has several causes. A lot of money has gone to charitable organisations supporting ALS as well as other neurological illnesses. Continue reading

Shortlisted, and shortlisted again!

10157340_727226263966742_4615679532628949535_n

The writing gods have been very kind this week, and there’s a definite silver lining feeling attached to it.

Not only has the MS Ireland group blog, who I also write for, been shortlisted in the Blog Awards Ireland 2014 competition, but I’m shortlisted in the two categories I was nominated in with my own blog.

Everyone in the MSI group is ecstatic, and it just makes you want to do more, write more and just achieve more. Continue reading

Brain facts

history-of-multiple-sclerosis-01-pg-full

BrainFacts.org

BrainFacts.org – Neuromyths

SharpBrains

(If you find a website you think might or should be added here, please email me on billie@ireland-ms.com)

© WVE and Ireland, MS and Me, 2011-2014.Unauthorised use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to WVE and Ireland, MS and Me with appropriate and specific direction to the original content.

 

Clinical trials

images

ClinicalTrials.gov

Drug Discovery & Development

(If you find a website you think might or should be added here, please email me on billie@ireland-ms.com)

© WVE and Ireland, MS and Me, 2011-2014.Unauthorised use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to WVE and Ireland, MS and Me with appropriate and specific direction to the original content.

 

Neurology

10435031_10152309613494667_163732996572754213_n

Journal of Neurology & Neurosurgery

Journalwatch Neurology

Netmed Neurology

Neurology Care

Neuronetwork Ireland

Neuroscience Ireland

(If you find a website you think might or should be added here, please email me on billie@ireland-ms.com)

© WVE and Ireland, MS and Me, 2011-2014.Unauthorised use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to WVE and Ireland, MS and Me with appropriate and specific direction to the original content.

 

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