Trigeminal Neuralgia Awareness Day

Tomorrow is the first Trigeminal Neuralgia Awareness Day, focused on bringing awareness about facial pain disorders.

This year I have gone through severe TN attacks myself and I therefore want to spread awareness about Trigeminal Neuralgia, also called “the suicide disease” because of the severity of pain experienced.

Please check out this video and these internet pages:

http://www.tnawarenessday.com/ :

“The presumed cause of TN is a blood vessel pressing on the trigeminal nerve as it exits the brainstem. This compression can wear away the protective coating around the nerve (the myelin sheath). TN symptoms can also occur in people with Multiple Sclerosis (MS), a disease caused by the deterioration of myelin throughout the body, or may be caused by damage to the myelin sheath by compression from a tumour.

There is no single test to diagnose TN. Diagnosis is generally based on the patient’s medical history, description of symptoms and a physical and thorough neurological examination by a physician. Because of overlapping symptoms and the large number of conditions that can cause facial pain (see ‘Facial Pain Disorders’ on the next page), obtaining a correct diagnosis is difficult, but finding the cause of the pain is important as the treatments for different types of pain may differ. However, whilst the trigeminal nerve might be involved, it does not automatically establish the diagnosis of TN.”

http://www.timescolonist.com/life/rare-nerve-disorder-causes-severe-facial-pain-1.635544 about rare nerve disorder causes severe facial pain

http://www.kidderminstershuttle.co.uk/news/10699606.My_battle_to_beat__suicide_disease_/?ref=rss&utm_source=twitterfeed&utm_medium=facebook about the battle to beat the ‘suicide disease

https://www.facebook.com/notes/end-trigeminal-neuralgia/new-to-trigeminal-neuralgia/399033016885544 explains TN in a short overview

https://www.facebook.com/Oct7thTNawareness?hc_location=timeline: Facebook page about International Trigeminal Neuralgia Awareness Day

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© WVE and Ireland, MS and Me, 2011-2013. Unauthorised use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to WVE and Ireland, MS and Me with appropriate and specific direction to the original content.

7 Comments

  1. Nikki says:

    Thank you for using my posts and the video to increase awareness. I’m a new follower :) I’ve added my blog in case you ever decide to take a look.

  2. M says:

    Great to see this hope it can help people as my mum has TNA for many years and sad to see little support and awareness in Ireland. If any one knows of support groups in Dublin please post it as be grt to hear as I can seethe person can feel alone with this condition.

    • Billie says:

      It’s awful how little knowledge and indeed support there is in Ireland. I live in Dublin also and so far I haven’t heard of any support groups over here (I haven’t necessarily been looking hard but people do get lonely with this kind of symptom/illness). As soon as I find out more, I’ll post it here OK.

  3. Pingback: Today is International Trigeminal Neuralgia Awareness Day | Ireland, Multiple Sclerosis and Me

  4. Liz says:

    Thank you for raising awareness about Trigeminal Neuralgia. I hope you can have more good days than bad. Keep hoping for something better….

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