MS

MS in numbers

brain-illustration3

Because not every country has a MS register yet, it is difficult getting exact figures about how many people have MS. This means that some figures are estimates only. While the numbers below (taken from different websites), may sound frightening, it’s important to focus on the good. Continue reading

Big pharma’s friendship

It’s not like it was ever meant to be. I lived an almost frugal life, not in a penny-pinching kind of way but willingly not accepting any chemical products in my system. No cigarettes, no alcohol, no mind-altering hard or soft drugs. You get the idea, straight edge, but without the punk attire. With the help of my family’s diet, I lived a very healthy lifestyle, that much is true.

So what went wrong? How do you become the owner of a chronic, neurodegenerative illness nobody in your family has, despite the supposed genetic predisposition people with MS have?

Did I stress too much in my adult life?

Did I have a difficult childhood?

Did someone else in my family have MS without them being aware of it?

It’s hard to know when the cause of an illness is yet unknown to research scientists. Continue reading

Tiredness ≠ fatigue

Sunday 9.13am. While others are slowly waking up, I can barely keep my eyes open. In fact, I am sliding deeper and deeper under my duvet, with my laptop now at an awkward angle to type. Being wide awake since 1.30am – thank you so very, very much MS – has depleted my energy tank.

“So what?” I hear people say. “It’s Sunday after all.”

Yes, I do know how to read calendars and clocks. I even know how to reset the microwave clock when Ireland changes to a new daylight saving time. Please don’t compare healthy tiredness to medical fatigue, it’s like comparing microwaves to planet Mars.

Continue reading

Positive MS News: August 2014

 

gene-that-controls-nerve-conduction-velocity-linked-to-multiple-sclerosis-neuroinnovations

August 2014 has been a great month for people with neurological illnesses, as they finally saw their type of illness broadcast, and indeed, doused by ALS ice bucket challenges.

To quickly place ALS amongst other neurological illnesses, perhaps the most famous person with ALS is Stephen Hawking, a person hero of mine since my teenage years. ALS, also called MND (Motor Neurone Disease and Lou Gehrig’s Disease), is similar to multiple sclerosis, and has several causes. A lot of money has gone to charitable organisations supporting ALS as well as other neurological illnesses. Continue reading

No end to trigeminal neuralgia

b61ee3bf0e7ee52d0332a9f29cdf1143Oh dear.

It was indeed that time again.

“When I’m good, I’m really good, but when I’m bad, I’m even better,” Mae West once said. Now I don’t know much about Mae West, but I see her as an all-out cowgirl, slinging guns left, right and centre. In that respect, Mae, girl power, and let us all be great when we’re good, and even worse when we’re bad!

While I’m sitting here, typing fine long sentences, I’m almost giddy of pain, and the left side of my face feels like it’s being pulled way west in the direction of the Atlantic Ocean. My left eye feel like closing up shop for a week or two, and my brain is slowly being stir-fried. Yes, that is what trigeminal neuralgia feels like.

It’s not always like this though, as trigeminal pain can translate in different ways. It can feel like the ice bucket challenge, an earthquake, and monsoons as well as just… Mae West’s “when I’m bad, I’m even better.”

Silly girl, of course (me, not Mae West). I’m an idiot. Here I am, telling people to take care of themselves, telling them to take some time off from their MS as it’ll be there long enough, but do I listen to myself? Continue reading

Shortlisted, and shortlisted again!

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The writing gods have been very kind this week, and there’s a definite silver lining feeling attached to it.

Not only has the MS Ireland group blog, who I also write for, been shortlisted in the Blog Awards Ireland 2014 competition, but I’m shortlisted in the two categories I was nominated in with my own blog.

Everyone in the MSI group is ecstatic, and it just makes you want to do more, write more and just achieve more. Continue reading

Brain facts

history-of-multiple-sclerosis-01-pg-full

BrainFacts.org

BrainFacts.org – Neuromyths

SharpBrains

(If you find a website you think might or should be added here, please email me on billie@ireland-ms.com)

© WVE and Ireland, MS and Me, 2011-2014.Unauthorised use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to WVE and Ireland, MS and Me with appropriate and specific direction to the original content.

 

Clinical trials

images

ClinicalTrials.gov

Drug Discovery & Development

(If you find a website you think might or should be added here, please email me on billie@ireland-ms.com)

© WVE and Ireland, MS and Me, 2011-2014.Unauthorised use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to WVE and Ireland, MS and Me with appropriate and specific direction to the original content.

 

Neurology

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Journal of Neurology & Neurosurgery

Journalwatch Neurology

Netmed Neurology

Neurology Care

Neuronetwork Ireland

Neuroscience Ireland

(If you find a website you think might or should be added here, please email me on billie@ireland-ms.com)

© WVE and Ireland, MS and Me, 2011-2014.Unauthorised use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to WVE and Ireland, MS and Me with appropriate and specific direction to the original content.

 

MS Services

icon_home_patient_info

Can Do Multiple Sclerosis

Consortium of Multiple Sclerosis Centers

HealthCare Journey

MS-UK

MS Trust

Multiple Sclerosis Discovery Forum

Multiple Sclerosis Foundation

Shift.ms

ThisIsMS

(If you find a website you think might or should be added here, please email me on billie@ireland-ms.com)

© WVE and Ireland, MS and Me, 2011-2014.Unauthorised use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to WVE and Ireland, MS and Me with appropriate and specific direction to the original content.

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