To say that life can be funny is, well… funny by any stretch of the imagination. Time is just flying by without it taking notice of those who want to enjoy it that little bit more, or live it that little bit longer. And as I get older, I am trying to cram as many experiences into one day as possible, or even in one year.
There are personal goals that need to be met, articles that need to be shaped into something clear, concise and uplifting, and if possible, new connections to be made. No man’s an island, and as waves come and go, so do we. Continue reading
You might think, “Not another picture about MS!?”
You’re right. It is another picture about MS. This one however, is different.
I hope that after reading this article, you will have learned how the Irish MS society (also called MS Ireland), is able to provide hope where there’s none, not only through utter commitment and hard work, but also with quiet strength. Continue reading
Dr Anita Rose is a Consultant Neuropsychologist who works across the globe. She created a list on how to manage MS fatigue and this is something to live by. Dr Rose is well-known for her clinical work, research and consultancy to different MS groups, i.e. the MS Society of South Africa (Western Cape) as well as in European groups. She travels the world speaking of patient, as well as health professional empowerment.
Fatigue is not only a debilitating symptom of MS; it also is the most common symptom. Those living with it speak of it in various strength and terms, and only have one hope: to one day be relieved of a symptom that upsets daily routines and causes people to retire from work.
Managing fatigue top tips, by doctor and author Anita Rose
Always remember you should never accept fatigue as an inevitable consequence of MS! Continue reading
When I was growing up, I used to hear stories about my grandfather’s need of having things sorted in an often peculiar way. One example: items placed on the indoor fireplace mantel had to be lined up with the edge of the mantel. He would run his fingers along the edge and if the items were placed too far back, he would raise his eyebrows in jest at my grandmother. Other examples exist, and if the term ‘OCD’ existed in his time, he might have been a possible candidate to earn that title.
My granddad’s legacy was that I inherited some of his peculiar ways. His fireplace mantel is one thing, my kitchen cupboards another. Continue reading
Ruth Humleker, a profoundly political, strongly opinionated and utterly fearless woman once said, “I can change only myself, but sometimes that is enough.” With her words often on replay in my head, I think back to that day.
Yes… t-h-a-t day in April 2005.
Diagnosed. Officially a lifetime carrier and member of a band called multiple sclerosis. Question is, what will you do with that membership? Use it? Abuse it? Throw it out?
As it turned out, soon after t-h-a-t day, I knew I would be using this broken vehicle as a tool of some sorts, perhaps to help others. And yes, yes… you can stop whispering “anyone but yourself!” Continue reading
As an MSer, you always hope. Perhaps you dream big, and you wish for a cure. Or you pray for a new form of medication to tackle your most annoying symptoms. In my case, I literally ache for better trigeminal neuralgia treatment before having to resort to surgery to numb or destroy the trigeminal nerve in my face. I also hope that one day, my severe fatigue will be something of the past by having medication that will keep me alert, awake and active without having nasty side effects.
Hoping for a cure? Of course. I am realistic though, as it might not happen in my lifetime. Simply being part of the solution, is all I wish for right now. Whichever comes first, the 8,000 people with MS in Ireland, 100,000 in the UK, 400,000 in the US and many other people around the world are looking forward, and simply… hope. Continue reading
While doing a big administration clean up, I came across some old notebooks. The one that caught my eye started on June 5th 2005, and lists MS, professional, friendship and relationship woes as I was diagnosed just two months prior.
It’s very much an interior monologue trying to make sense out of nonsense. For example, I wrote about the last meeting with my dog Wolf right before he was put down.
Questions about certain relationships also feature heavily as a new me was now meeting new demands, wishes etc.
In the next few weeks, I will be publishing parts of my diagnosis diary, so keep an eye on my blog.
Dogs, miracles with paws
See you then!
© WVE and Ireland, Multiple Sclerosis & Me, 2011-2014. Unauthorized use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to Willeke Van Eeckhoutte and Ireland, Multiple Sclerosis & Me with appropriate and specific direction to the original content.
One of the many things people newly diagnosed with MS (PwMS) look for is information on what their illness will have in store for them.
From thinking back to when I was discovering what MS might be like, I remember an overwhelming feeling of “where on earth do I even begin?” when I finally went online. I was numb and in denial but knew I had to find out more if I wanted to create a realistic idea of it.
Approximately 5,000 people are newly diagnosed with MS each year in the UK, and for this reason, the MS Trust commissioned the “Making Sense of MS” resource to highlight the need for more information at the time of diagnosis. Continue reading
Since writing my article about depression five days ago, and my mum’s 7-day visit to Ireland, I feel a shift has taken place in my mind.
I am not 100% there yet, but I am well on my way to finding uncompromising resolve again. Many grand and tiny gestures have contributed over the last 4-5 weeks, and are still willing me forward today. Of course, the backing of friends and family, as well as my medical team definitely helped.
Most of all, though, I had once again come to the realisation that I unfortunately need more sleep than the average, healthy person. At this stage so, I must start considering my continuous fights against tiredness and “forgetfulness” about needing a lot of sleep, as a pure character flaw. Continue reading
Once again, a lot of research news was published online, with the best headline saying “54 New MS Research Projects to Receive Millions of Dollars in Funding.” In my view, I can only jump up and down like a child at Christmas reading about new research and positive trial results. Even if or when we’re struggling with our illness, we know that lots is happening to help us forward in life.
So please, enjoy the list with research & clinical trial news, updates on current medication and business & general news. Continue reading