Multiple Sclerosis

The social swing of life

social-mediaLife isn’t viewed through our own two eyes anymore. We now let a smartphone be the first witness of things happening around us. We learn about other people’s lives, not by talking to, or observing them from a sun-drenched patio with a cool drink in front of us. Instead, we check out our friends’ Facebook pages and read their blogs. Direct communication seems a thing of the past. Continue reading

National Annual Awards 2014

It’s the season of nominations, so why add your vote in MS Ireland’s MS Person of the Year, MS Carer/Helper of the Year or MS Volunteer of the Year for the National Annual Awards 2014?

As you already know, I applaud Multiple Sclerosis Ireland for the hard work they put into helping those with MS, and fight for those who care for them. The society has received many mentions in my blog here, and for good reason. From the day of my diagnosis, now 9 year ago, I have had the best people listening to my initial denial to now being supported in raising my voice for other people with MS today.

Many people have had the chance of being part of a very vibrant volunteer network, or have been helped by them. For those volunteers, carers, helpers or a person with MS, the National Annual Awards have been created: “Our annual National Awards recognise those who through their dedication and selflessness play a significant role in the lives of others and the progress of the Society.”

So, if you’re a member of a Branch, an individual member or staff, and you know a member who you feel deserve recognition, please nominate your special person in one of the three categories:

The closing date for nominations is Friday, August 1st 2014.

For more details about the awards, contact Alice McKeon on alicem@ms-society.ie or on (01) 6781608 or drop in to your local Regional Office to pick up a form.

The 2014 awards will be presented at the Annual General Meeting in September.

© WVE and Ireland, MS and Me, 2011-2014. Unauthorised use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to WVE and Ireland, MS and Me with appropriate and specific direction to the original content.

Game, set, relapse!

“Dwell on the beauty of life.
Watch the stars, and see
yourself running with them.”
(Marcus Aurelius, Meditations)

There’s no hiding when a MS relapse is in town. It arrived on my doorstep about 5 days ago, warts and all, and I’m still trying to hide. I could give you the nitty gritty technical bit of it, but I fear it wouldn’t read like a Booker prize novel. And that, is something I aspire to one day, just not today. Continue reading

FEATURED: Volunteering, a worthy cause

volunteers

Sometimes things happen in life you never saw coming. And sometimes, you feel utterly defenseless because you simply couldn’t step in to help.

But what if you create something good out of something so bad?

Continue reading

Not my face!

162974080234952360_x4ok1y8s_fSomeone once said “Babe, you may have MS, but you’re still sexy. Never forget that.”

Shortly after my diagnosis, my then-boyfriend uttered those very words. He must have seen me look at myself in a critical manner one too many times since returning home from a two-week stint in hospital, wondering if ‘MS’ really was written on my face.

Even though I don’t usually give in to superficial words like this, and don’t necessarily follow fashion to a T, hearing his words did wonders for my mind. The relationship didn’t stand the test of time, but sometimes I still say those lines to myself. Nine years ago, his words became a quick-fix mantra to pick myself up when I needed a boost. Continue reading

Defined by myself, not my illness

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My name is Billie. I am a daughter, sister, aunt, niece, sister-in-law, cousin, granddaughter and simply a part of a special family.

I am, however, also an individual.

I am passionate, caring, goofy, alternative, tenacious and inquisitive.

Continue reading

World MS Day 2014 in Ireland

Photo ©Naoise Culhane

Photo ©Naoise Culhane

Wednesday, May 28th is World MS Day. All over the world, people will organise events, wear orange, volunteer, work and/or attend conferences to raise awareness about an illness that so far, still cannot be cured.

While 2014 is the ‘European Year of the Brain,’ this year’s World MS Day theme is ‘Access.’ Whether this means access to information, medication, support, buildings, rights or services, somewhere near you people with MS, their families and MS societies will step forward and express their need for more awareness, understanding and hope that one day, MS will be eradicated for good. Continue reading

Medical Website Links

linksCentre for Mindfulness Research and Practice UK

eMedicine Health, experts for everyday emergencies

Everyday Health

Johns Hopkins Medicine

Mayo Clinic

Mindfulness – Your Present Moment

WebMD

Weight Watchers

© WVE and Ireland, MS and Me, 2011-2014. Unauthorised use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to WVE and Ireland, MS and Me with appropriate and specific direction to the original content.

Disability Links

 

linksfffConvention on the Rights of Persons with Disabilities (SCRPD)

Disability and the United Nations

European Network on Independent Living (ENIL)

Universal Declaration of Human Rights

© WVE and Ireland, MS and Me, 2011-2014. Unauthorised use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to WVE and Ireland, MS and Me with appropriate and specific direction to the original content.

Neurology Links

enlacesJournal of Neurology & Neurosurgery

Journalwatch Neurology

Netmed Neurology

Neuronetwork Ireland

Neuroscience Ireland

© WVE and Ireland, MS and Me, 2011-2014. Unauthorised use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to WVE and Ireland, MS and Me with appropriate and specific direction to the original content.

MS Organisations

imagesOn European level

European Committee for Treatment and Research in Multiple Sclerosis

European Multiple Sclerosis Platform

MS Trust

Multiple Sclerosis International Federation

MS Societies around the World

MS Society Ireland Continue reading

Rewind, Pause, Forward, Play

Life’s been very busy lately, hence no new posts for a while. It’ll be empty for another week or so, but I absolutely AM still writing away.

Right now so, it’s all about rewind, pause, forward and play!

images© WVE and Ireland, MS and Me, 2011-2014. Unauthorised use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to WVE and Ireland, MS and Me with appropriate and specific direction to the original content.

Giving up is not an option

“We are all different – but we share the same human spirit.
Perhaps it’s human nature that we adapt – and survive.”
(Stephen Hawking)

Just realised a startling… well… realisation. In three years of online writing, I’ve never as much wrote one blog post about the possibility of ending up in a wheelchair. Is it denial? Simply focusing on being positive? I don’t know what the heck it is, either way, writing about it is way, way overdue.

Of course, when you hear ‘multiple sclerosis,’ you straightaway think of being confined to a wheelchair for the rest of your life.

Others think of you ending up in a wheelchair for the rest of your life.

Suddenly you see wheelchairs everywhere. Continue reading

EMSP Spring Conference 2014, Dublin

emspThis year is the European Year of the Brain, and 2014 also marks the 25th birthday of the EMSP, the European MS Platform.

Unequivocally and visibly astonished, that’s what I am right this minute. The quality of yet another MS organisation and the hard work they do, makes me want to jump up and down. Digging deeper into the work of the EMSP because of their upcoming two-day conference in Dublin, I can only say one thing: ‘People with MS are in very, very good hands, with people with- or without MS standing up for them wherever they are.’

Continue reading

Strength = choice

An invisible illness isn’t a choice.
My visible hope is.

strength

© WVE and Ireland, MS and Me, 2011-2014. Unauthorised use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to WVE and Ireland, MS and Me with appropriate and specific direction to the original content.

MS Trust 21 Challenge

The MS Trust posed me a great question, asking me to help spread a word about the UK Awareness Week that runs from April 28th to May 4th. I do love a challenge,  so anyway I can help from my keyboard, I happily attack!

So, do you feel like a challenge? How about a fun way to raise awareness regarding MS? Check out the UK’s MS Trust website to be inspired, take a stance and do something worthwhile. MS Trust’s Awareness Week and we want you involved!

The trust was set up 21 years ago, and is celebrating this by inviting everyone to join their 21 day challenge and sponsor, shout and help others spread the word about MS Trust’s Awareness Week from April 28th to May 4th. Continue reading

H.O.P.E. (Hold On, Pain Ends)

“The best way to not feel hopeless is to get up and do something.
Don’t wait for good things to happen to you.
If you go out and make some good things happen,
you will fill the world with hope,
you will fill yourself with hope.”
(Barack Obama)

It has been a bit of a hectic, but a great time to write lately. Two bits of fantastic news came my way in regards to my writing, and I’ve been over the moon since.

Continue reading

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