Multiple Sclerosis

Death: a fearful thing

2008

I was afraid.

Each time I experienced gastrointestinal changes, I tried not to worry. But I did.

Even when I tried to get this worry down on paper, I failed to finish two consecutive sentences. One sentence if I allowed my interior monologue to perform a James Joyce oration without punctuation.

That was not me however. I usually didn’t let chaos overwhelm me. My path of life had on regular intervals been paved with chaos, so I was well-used to it. Continue reading

The social swing of life

social-mediaLife isn’t viewed through our own two eyes anymore. We now let a smartphone be the first witness of things happening around us. We learn about other people’s lives, not by talking to, or observing them from a sun-drenched patio with a cool drink in front of us. Instead, we check out our friends’ Facebook pages and read their blogs. Direct communication seems a thing of the past. Continue reading

National Annual Awards 2014

It’s the season of nominations, so why add your vote in MS Ireland’s MS Person of the Year, MS Carer/Helper of the Year or MS Volunteer of the Year for the National Annual Awards 2014?

As you already know, I applaud Multiple Sclerosis Ireland for the hard work they put into helping those with MS, and fight for those who care for them. The society has received many mentions in my blog here, and for good reason. From the day of my diagnosis, now 9 year ago, I have had the best people listening to my initial denial to now being supported in raising my voice for other people with MS today.

Many people have had the chance of being part of a very vibrant volunteer network, or have been helped by them. For those volunteers, carers, helpers or a person with MS, the National Annual Awards have been created: “Our annual National Awards recognise those who through their dedication and selflessness play a significant role in the lives of others and the progress of the Society.”

So, if you’re a member of a Branch, an individual member or staff, and you know a member who you feel deserve recognition, please nominate your special person in one of the three categories:

The closing date for nominations is Friday, August 1st 2014.

For more details about the awards, contact Alice McKeon on alicem@ms-society.ie or on (01) 6781608 or drop in to your local Regional Office to pick up a form.

The 2014 awards will be presented at the Annual General Meeting in September.

© WVE and Ireland, MS and Me, 2011-2014. Unauthorised use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to WVE and Ireland, MS and Me with appropriate and specific direction to the original content.

Game, set, relapse!

“Dwell on the beauty of life.
Watch the stars, and see
yourself running with them.”
(Marcus Aurelius, Meditations)

There’s no hiding when a MS relapse is in town. It arrived on my doorstep about 5 days ago, warts and all, and I’m still trying to hide. I could give you the nitty gritty technical bit of it, but I fear it wouldn’t read like a Booker prize novel. And that, is something I aspire to one day, just not today. Continue reading

Not my face!

162974080234952360_x4ok1y8s_fSomeone once said “Babe, you may have MS, but you’re still sexy. Never forget that.”

Shortly after my diagnosis, my then-boyfriend uttered those very words. He must have seen me look at myself in a critical manner one too many times since returning home from a two-week stint in hospital, wondering if ‘MS’ really was written on my face.

Even though I don’t usually give in to superficial words like this, and don’t necessarily follow fashion to a T, hearing his words did wonders for my mind. The relationship didn’t stand the test of time, but sometimes I still say those lines to myself. Nine years ago, his words became a quick-fix mantra to pick myself up when I needed a boost. Continue reading

World MS Day 2014 in Ireland

Photo ©Naoise Culhane

Photo ©Naoise Culhane

Wednesday, May 28th is World MS Day. All over the world, people will organise events, wear orange, volunteer, work and/or attend conferences to raise awareness about an illness that so far, still cannot be cured.

While 2014 is the ‘European Year of the Brain,’ this year’s World MS Day theme is ‘Access.’ Whether this means access to information, medication, support, buildings, rights or services, somewhere near you people with MS, their families and MS societies will step forward and express their need for more awareness, understanding and hope that one day, MS will be eradicated for good. Continue reading

MS Organisations

imagesOn European level

European Committee for Treatment and Research in Multiple Sclerosis

European Multiple Sclerosis Platform

MS Trust

Multiple Sclerosis International Federation

MS Societies around the World

MS Society Ireland Continue reading

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