Tag Archives: Facebook

FEATURED: The social swing of life

social-mediaLife isn’t viewed through our own two eyes anymore. We now let a smartphone be the first witness of things happening around us. We learn about other people’s lives, not by talking to, or observing them from a sun-drenched patio with a cool drink in front of us. Instead, we check out our friends’ Facebook pages and read their blogs. Direct communication seems a thing of the past. Continue reading

Fierce Friday

Ah yes, sometimes my nerves – not nervous system – sometimes my nerves get on my nerves as it were.

I happen to coexist with a messed up central nervous system, overly active heartbeat, breathing problems and every now and then I find myself covered with a nice infection or two. If that wasn’t enough, I have a few pet peeves, which on occasion drive me crazy.

Ψ Screeching kids in shopping centers. On buses, in cinemas, in my ear.

Ψ Said kids kicking my seat in the cinema. How to solve this? ♫♫ Sitting in the back row of the movies ♫♫ Continue reading

2013 in review

The WordPress.com stats helper monkeys prepared a 2013 annual report for this blog.

Here’s an excerpt:

The concert hall at the Sydney Opera House holds 2,700 people. This blog was viewed about 15,000 times in 2013. If it were a concert at Sydney Opera House, it would take about 6 sold-out performances for that many people to see it.

Click here to see the complete report.

Thank you everyone who has commented, read and interacted with me about the contents about my blog! I appreciate it truly and hope to find you here in 2014 also! Happy new year!

© WVE and Ireland, MS and Me, 2011-2013. Unauthorised use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to WVE and Ireland, MS and Me with appropriate and specific direction to the original content.

 

30 Things about My Invisible Illness You May Not Know

I was sent this list after National Invisible Illness Week ended and asked if I wanted to write about it either way, so here are my answers:

1. The illness I live with is: Multiple sclerosis, the house guest that ends up on your doorstep, invites himself in and never leaves again.

2. I was diagnosed with it in the year: I was diagnosed in 2005, three months before my 32nd birthday Continue reading

Being active

Last week I received an invitation to take part in the 2013 National Meeting Day panel discussion on September 28th by the MS Society of Ireland. Needlessly, I accepted straight away as ‘Being Active and Interactive’ is something that lies close to my heart.

If you’ve been part of my blogging community for a while, you already know my online involvement in regards to writing about life with multiple sclerosis as an unwelcome passenger. Because of this, adding something worthwhile to a panel discussion about how staying active and being part of an online community can lead to a very fulfilling pastime – no matter how dull or uninviting it sounds – is something I absolutely want to be part of.

As a child and teen, being involved and fighting for the good for those less well-off was something I wanted to carry into my adult life. However, after moving from Belgium to Ireland in 2002, this activity was pushed away to work hard on my career. I studied, did lots of overtime and enjoyed every second of it. Continue reading

Break!

MS threw a tonne of bricks at me this weekend.

I’ll be back with more posts later today or tomorrow!

Thanks to everyone replying and liking my blog!

© WVE and Ireland, MS and Me, 2011-2013. Unauthorized use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to WVE and Ireland, MS and Me with appropriate and specific direction to the original content.

Ireland 2013 Blog Awards

Yesterday I found out that a friend nominated me for an Ireland 2013 Blog Award. Needless to say I am chuffed, and blessed!

In return I want people to know how honoured I am to have gathered so many followers who are interested in what I bring. Even if you don’t blog yourself, you are the backbone of my reason for writing and I happily return the favour by reading and seeing your work. Reading individual stories often makes me chuckle and laugh, think and discuss.

Since there are only a few days left to vote for the Ireland 2013 Blog Awards, I have a favour to ask you. Since finding out that there is even such a thing like Ireland Blog Awards, I’d be totally in awe if you could nominate me in the Health & Wellness Category and/or the Personal Blog Category on this weblink here: http://www.blogawardsireland.com/nominations-open/. Continue reading

Sunshine Award!

sunshineaward_sm1Sometimes surprises arrive when you least expect it.

Just now I commented on dear Tink’s blog post on her receipt of the Sunshine Award, sending the comment and only then reading the entire blog post. That’s when I caught sight of my own nomination for the award (which is in fact the actual receipt if the award and not just a nomination). Continue reading

Ireland, 75 shades of green

WordPress Daily Prompt: Green-Eyed Monster
Tell us about the last time you were really, truly jealous of someone. Did you act on it? Did it hurt your relationship?Photographers, show us something GREEN.

Wicklow Mountains, Ireland 2011

Wicklow Mountains, Ireland 2011

Wicklow Mountains, Ireland 2011

Wicklow Mountains, Ireland 2011

Continue reading

Patience and persistance

WordPress Daily Prompt: Key Takeaway
Give your newer sisters and brothers-in-WordPress one piece of advice based on your experiences blogging. If you’re a new blogger, what’s one question you’d like to ask other bloggers?

Patience and persistence is key when you first start blogging. Why you want to  write publicly is totally your idea, how you do so is by using WordPress and its many users’ intelligence.

Almost 2 years into my blogging adventure, I still find it an amazing tool to get your voice heard. When I started blogging, I simultaneously wrote on Blogger as well as on WordPress, just to find out what was the perfect tool for what I wanted out of my blog. After blogging on both for a while, I became very dissatisfied with the lack of settings Blogger had in comparison to WordPress. The choice to drop my Blogger profile was an easy one to make, and to this day, I am still amazed at what WordPress offers its bloggers.

Continue reading

Blog break!

Yep, you read it right… I am taking a blog break (ah, stop jumping up and down, will ya! :)). Although wait… no, I am not taking a break from blogging because if/when my eyes allow me, and my fatigue is not through the roof, then I will be writing. Only difference is that I will not be posting it online for a week or so (my fingers are already itching because they want to… they need to… they crave spending time on WordPress!).

So have a great week and beware of the floodgates opening on Ireland, MS and Me! You’re warmed! :Dblog break

© WVE and Ireland, MS and Me, 2011-2013. Unauthorized use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to WVE and Ireland, MS and Me with appropriate and specific direction to the original content.

Why blog?

WordPress Daily Prompt: Million-Dollar Questio is why people blog… Funny that… wondered about that last year also!

Have you ever heard of bibliotherapy? Wikipedia describes it as ‘a therapy that uses a person’s relationship to the content of books and poetry and other written words and it’s often combined with writing therapy.

Where other people might need bibliotherapy, I consider writing a help to ease past issues like being diagnosed with multiple sclerosis in 2005. However, when I started my blog, I didn’t think writing would become some sort of therapy I would find useful and it was not the initial goal. That goal only became clear after blogging for about a year, and realising it helped me settle my relationship towards my illness and eventually, seeing things in a more realistic way. Continue reading

WordPress, my love!

Ah yes, I have been at it again. How better to fill a much-needed day full of rest and my usual relaxation by reading and once again jumping on my WordPress blog like a hungry wolf looking for a change in scenery?

In this case, the ‘scenery’ is the design and layout of said blog, and checking with experienced WordPress writers on how to better my blog. I am QUITE HAPPY, IN FACT ECSTATIC about the following I have been able to build over almost two years of blogging, but since I am also the said wolf, I need and/or want to build a larger audience (yes… in the back of my mind I am still dreaming about writing books). When the WordPress Community Pool said to add a comment to their most recent post if you want to have some experienced help in building blogs, I did not say no.

Result was something along these lines: “For someone whose first language is not English, you are doing splendidly. Your blog background? Playful but almost too playful and expected for your theme. Perhaps you ought to change it. You also might want to consider making a static homepage; show small snippets of each post instead of full text. This will boost your views and help intrigue people.”

I totally agree that my earlier theme was too playful for the content of my blog, i.e. quite green, quite flowery and well… too optimistic. Since I added the green theme because it was St Patrick’s Day in Ireland, I thought it actually looked very well but I do agree that some people might have felt it was too cheery. After all, living with multiple sclerosis is not always happy days!

The theme suited my mindset – optimistic, happy-go-lucky and always up for mischief – but I do believe that it could have given the wrong message if my aim is to tell people on living with MS, or if my aim is to be an inspiration without sounding like a quack or escaped nutter.

Hence, theme changed back to one of my favourites (Sunspot) but I wanted to stick with a greenish kind of look. Because Sunspot allows darker themes, and since I really do suffer from maddening eye pains when reading things black on white, I thought, “Ah what the hell, just go for it and stay green!” I suppose I will hear soon enough if the colour scheme is still too bright and cheery (I have some brilliant readers interested in my blah-di-blah on WordPress who are willing to send me mails on how they view my blog).

I also felt that changing to small snippets of each post as opposed to posting full texts would be a welcome change because when I talk… I talk. Lots. Cannot shut up. Really, I cannot. This way readers can now see short pieces of blog posts and hopefully be intrigued enough to read the rest of the post.

Since people keep coming back to read more, or read old posts again, I do want to thank my public’s patience because I seem to go through changes of themes on an almost five to six-weekly basis. If my eyes wouldn’t cause so much trouble, I would probably stick to just one theme to create consistency, but I kind of blame WordPress a bit also… they offer such great ideas on how to set up your blog by providing free themes, colours, images etc that I am like a kid in a candy store… can’t wait to look for new themes and/or changes again in a few weeks!

So once again, I truly do want to thank everyone for bringing this blog to other people’s attention, and therefore creating a real network of followers and because of all of you, I will keep on blogging. I have received fantastic feedback over the last two years and I feel inspired by you, inspired enough to want to learn more about what ails me, about the future of MS research and about the failings of health services, in not only Ireland but elsewhere also. It is only because of networking that people can create a big turnaround where needed. It will continue to be hard work fighting my severe fatigue and daily chronic pains, but you know… as long as I can keep on writing, life is good, no matter what anyone else says (but yes… I probably broke all the rules listed below on how to write well!)150954_350331238398691_246089328_n

©WVE and Ireland, MS and Me, 2011-2013. Unauthorised use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to WVE and Ireland, MS and Me with appropriate and specific direction to the original content.

Finding Her Here, by Jayne Relaford Brown

“I am becoming the woman I’ve wanted,
grey at the temples,
soft body, delighted,
cracked up by life
with a laugh that’s known bitter
but, past it, got better,
knows she’s a survivor-
that whatever comes,
she can outlast it.

Continue reading

MS Awareness Week 2013

MS Awareness Week from
Monday, March 11 2013 to
Sunday, March 17th 2013.
Tell us why you connect on:
http://www.msconnection.org/

© WVE and Ireland, MS and Me, 2011-2013. Unauthorized use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to WVE and Ireland, MS and Me with appropriate and specific direction to the original content.

 

Trigeminal neuralgia… argh!

Brain fog. “Being blonde”. Now I know what it feels like.

Years ago I acquired the “just being blonde” tag by others in my team at work because I suddenly needed time to digest ideas, questions and discussions. I would never have referred to myself as “being blonde” in those days because I used to be quick-witted, but a) I was dark-haired back then, and still am, and b) I would have taken offense at being associated with the stupidity some blondes go through life with (that said, every other hair colour has flaws also and it was just the way people referred to me this way). Today though I am being majorly, I truly am super-trooper-dooper-dippitydoooo-blonde. And there’s no shame in it. At all.

In other words: my elevator of knowledge does not travel all the way up to the top floor right now; it keeps sticking somewhere between the 3rd and the 4th floor. I hear people talking, but there’s no understanding flowing from hearing and seeing them move their lips and vocal chords into linguistic marvels of the 21st century. Continue reading

What about it?

3.30am. Eye pain and headaches have taken an option on my sleep, wanting to do better than each other. In addition to that, ideas for a blog post keep flying in my head. My mind is busy compartmentalizing thoughts while my eyes are in charge of my sleeping patterns. Nice!

And now my hair also hurts. Seriously, it does! The frequent – if not chronic pains – have prevented me from blogging much lately so I am slowly turning into a state of anarchy. Several attempts of writing happened but none were finished because either sleep came knocking on my door, or I have to analyze a few episodes of James Joyces Ulysses for the reading group I’m in, or I have other things requiring attention. So if I do manage to finish this post, please forgive my rambling on. As I said, my eyes and brain are in charge of the rest of my intellectual being right this minute and I have very little say in what I want the rest of my body to do.

While I intend to “just exist” for the rest of the day, I do feel guilty for not blogging much (the guilt is an acquired Irish thing, mind you). I hope I won’t have any phone calls today (yep, my eyes and ears still hurt when talking on a mobile phone) and no cleaning, ironing, washing and/or reading (oh noooo!) will be done today. What will be on the menu will be lots of “RRS” or Rest, Relaxation and Sleep.

Trust me though, life is seriously linear and irreversible so if possible, I want to do more than “just exist” because it could be over in a split second. These days however I have less physical things I can/have to/want to do. In a James Joyce reading group. Sleep. Seeing Shakespearean and Joycean theatre plays. Rest. Read. More rest. Watch TV. Facebook. Sleep. Food shopping. Cinema. More sleep. Read some more. Fall asleep with book in my hands. Fall asleep in front of TV. Fall asleep in the cinema. Eat. More rest. And more sleep. Continue reading

Side effects?

© WVE and Ireland, MS and Me, 2011-2013. Unauthorized use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to WVE and Ireland, MS and Me with appropriate and specific direction to the original content.

 

New Year’s Resolutions

“I’m a little bit older, a little bit wiser, a little bit rounder,
but still none the wiser.”

(Robert Paul)

We’re going to get resolute about our new year’s resolutions in 2013,” according to a new weekly writing challenge on WordPress today. The doompocalyptic-resolutions-writing challenge asks us to write about “the three things you’d most like to change about your life, and make a bold, I-don’t-care-who-knows-it-because-there’s-a-meteor-a-comin’ assertion to the world that you are going to get these changes made. And that you’ll have at least started making them happen by March. When, erm, you’re probably going to wind up as dust.

Ouch… resolutions… dirty word! Especially on New Year’s Day. Even though I’ve never made tangible lists in the past, I always had a quickly-made-up and shortened version of one in my mind when I needed an easy-to-fix pick-me-up, purely for self-gratifying purposes of course. I know, I am a couch-potato when it comes to making resolutions or sticking to them… Continue reading

Education

Education is not filling a bucket,
but lighting a fire.
(William Butler Yeats)

© WVE and Ireland, MS and Me, 2011-2013. Unauthorized use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to WVE and Ireland, MS and Me with appropriate and specific direction to the original content.

 

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