Tag Archives: MS

What we don’t know

The MS community is well known for its willingness to talk about their illness. I myself might share more than others might, but that, of course, is a personal choice. Being from a family where I am the first one with MS, I almost constantly feel a need to share, teach and sometimes to explain some differences in opinion on how to live with MS. In that regard, I sometimes have MS things on my mind, but when I go online, I can’t see them discussed in chat rooms or forums.

Take for example brain atrophy. The first time I heard about atrophy was at a MS Patient conference in May. In the nine years of being diagnosed, never had I come across, and never did anyone talk to me about MSers having a faster-shrinking brain. To my very surprise, I therefore learned that in people with MS, brain volume is lost around three to five times faster than in healthy people. Continue reading

Death: a fearful thing

2008

I was afraid.

Each time I experienced gastrointestinal changes, I tried not to worry. But I did.

Even when I tried to get this worry down on paper, I failed to finish two consecutive sentences. One sentence if I allowed my interior monologue to perform a James Joyce oration without punctuation.

That was not me however. I usually didn’t let chaos overwhelm me. My path of life had on regular intervals been paved with chaos, so I was well-used to it. Continue reading

Featured On page updated

Interested in reading more? Check out the Featured On page on my blog with links to guide you!

 Neurons firing to communicate

Click for news on how MS fatigue may be linked to regional brain damage

© Willeke Van Eeckhoutte and Ireland, Multiple Sclerosis & Me, 2011-2014. Unauthorized use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to Willeke Van Eeckhoutte and Ireland, Multiple Sclerosis & Me with appropriate and specific direction to the original content.

 

Please help keeping the writer of this establishment caffeinated

D67E67A2-A1D9-4ABE-9D93-2E56390189F0-24007-00000188775ACDFBAh ladies and lads, you know I can be a bit kooky at times; hell, I can even get a little annoyed as well when things don’t go my way. I therefore won’t do it on this page. At all.

Where others might ask for the price of a pint, I don’t drink alcohol, so I won’t fall down on my knees begging you.

I also won’t fall down on my knees asking you for a donation of the price of a fag, as I don’t smoke. Continue reading

No end to trigeminal neuralgia

b61ee3bf0e7ee52d0332a9f29cdf1143Oh dear.

It was indeed that time again.

“When I’m good, I’m really good, but when I’m bad, I’m even better,” Mae West once said. Now I don’t know much about Mae West, but I see her as an all-out cowgirl, slinging guns left, right and centre. In that respect, Mae, girl power, and let us all be great when we’re good, and even worse when we’re bad!

While I’m sitting here, typing fine long sentences, I’m almost giddy of pain, and the left side of my face feels like it’s being pulled way west in the direction of the Atlantic Ocean. My left eye feel like closing up shop for a week or two, and my brain is slowly being stir-fried. Yes, that is what trigeminal neuralgia feels like.

It’s not always like this though, as trigeminal pain can translate in different ways. It can feel like the ice bucket challenge, an earthquake, and monsoons as well as just… Mae West’s “when I’m bad, I’m even better.”

Silly girl, of course (me, not Mae West). I’m an idiot. Here I am, telling people to take care of themselves, telling them to take some time off from their MS as it’ll be there long enough, but do I listen to myself? Continue reading

Brain facts

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BrainFacts.org

BrainFacts.org – Neuromyths

SharpBrains

(If you find a website you think might or should be added here, please email me on billie@ireland-ms.com)

© WVE and Ireland, MS and Me, 2011-2014.Unauthorised use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to WVE and Ireland, MS and Me with appropriate and specific direction to the original content.

 

Neurology

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Journal of Neurology & Neurosurgery

Journalwatch Neurology

Netmed Neurology

Neurology Care

Neuronetwork Ireland

Neuroscience Ireland

(If you find a website you think might or should be added here, please email me on billie@ireland-ms.com)

© WVE and Ireland, MS and Me, 2011-2014.Unauthorised use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to WVE and Ireland, MS and Me with appropriate and specific direction to the original content.

 

General websites

info icon

General MS web pages

About.com Multiple Sclerosis

ActiveMSers

All About MS

MSology.ca

Multiple Sclerosis (Wikipedia)

Multiple Sclerosis News Today

MultipleSclerosis.net

NHS Choices – Multiple Sclerosis

Overcoming Multiple Sclerosis

General medical web pages

Action Against Medical Accidents

Health Executive Ireland (Irish Health Department)

Healthcomplaints.ie

HealthFinder.gov

Medical Councel Ireland

Patient.co.uk

(If you find a website you think might or should be added here, please email me on billie@ireland-ms.com)

© WVE and Ireland, MS and Me, 2011-2014.Unauthorised use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to WVE and Ireland, MS and Me with appropriate and specific direction to the original content.

Specialised medical websites

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National Centre for Biotechnology Information

National Institute of Neurologic Disorders and Stroke

PubMed

(If you find a website you think might or should be added here, please email me on billie@ireland-ms.com)

© WVE and Ireland, MS and Me, 2011-2014.Unauthorised use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to WVE and Ireland, MS and Me with appropriate and specific direction to the original content.

Wheelchair?

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Wheelchair.

Not a dirty word.

Or a scary word.

Or a tool for lazy people.

It’s much more, and means even more to those having found their freedom again.

Waking up during the night with a funny, tingling feeling in one of my legs. Thinking nothing of it, I go back to bed. Continue reading

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The bitter truth

Everyone loves a good moan

One Blushing Bride

Wedding Inspiration for the Hopelessly Romantic Bride

Stumbling in Flats

. . . a funny old life with multiple sclerosis

My Upside Down Inside Out World

My Journey With Multiple Sclerosis and Other Things

Manuscript Tunes

by Following the Golden Quill

Flight of the Cubs

Chin stroking on Irish emigration from Down Under

Big Red Carpet Nursing

You Can Thrive, with The Right Tools

Kurt Brindley

listening for the wind ------------------------------------- (=_=).oO((coffeeee)) -------------------------------------

Cupid or Cats

I'm gonna get all up inside your head and I won't leave until you ask nicely

The Novel Project Chronicles

Getting it written one day at a time!

Healthcare Professional Development Centre - HPDC

Provider of CME Courses in All Health Disciplines: Health Services Mgt, Public Health, Medicine & Surgery, Pharmacy, Med Lab, Dentistry, Psychosocial Care, Nursing & Midwifery...

sexyachymoody

Spreading sexiness, supressing pain!

Beautiful Life with Cancer

Discovering the Gift

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