Tag Archives: MS

Conversations with myself: 2005-2006

write-with-style

While doing a big administration clean up, I came across some old notebooks. The one that caught my eye started on June 5th 2005, and lists MS, professional, friendship and relationship woes as I was diagnosed just two months prior.

It’s very much an interior monologue trying to make sense out of nonsense. For example, I wrote about the last meeting with my dog Wolf right before he was put down.

Questions about certain relationships also feature heavily as a new me was now meeting new demands, wishes etc.

In the next few weeks, I will be publishing parts of my diagnosis diary, so keep an eye on my blog.

For more:

Dogs, miracles with paws

See you then!

© WVE and Ireland, Multiple Sclerosis & Me, 2011-2014. Unauthorized use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to Willeke Van Eeckhoutte and Ireland, Multiple Sclerosis & Me with appropriate and specific direction to the original content.

What we don’t know

The MS community is well known for its willingness to talk about their illness. I myself might share more than others might, but that, of course, is a personal choice. Being from a family where I am the first one with MS, I almost constantly feel a need to share, teach and sometimes to explain some differences in opinion on how to live with MS. In that regard, I sometimes have MS things on my mind, but when I go online, I can’t see them discussed in chat rooms or forums.

Take for example brain atrophy. The first time I heard about atrophy was at a MS Patient conference in May. In the nine years of being diagnosed, never had I come across, and never did anyone talk to me about MSers having a faster-shrinking brain. To my very surprise, I therefore learned that in people with MS, brain volume is lost around three to five times faster than in healthy people. Continue reading

Death: a fearful thing

2008

I was afraid.

Each time I experienced gastrointestinal changes, I tried not to worry. But I did.

Even when I tried to get this worry down on paper, I failed to finish two consecutive sentences. One sentence if I allowed my interior monologue to perform a James Joyce oration without punctuation.

That was not me however. I usually didn’t let chaos overwhelm me. My path of life had on regular intervals been paved with chaos, so I was well-used to it. Continue reading

Featured On page updated

Interested in reading more? Check out the Featured On page on my blog with links to guide you!

 Neurons firing to communicate

Click for news on how MS fatigue may be linked to regional brain damage

© Willeke Van Eeckhoutte and Ireland, Multiple Sclerosis & Me, 2011-2014. Unauthorized use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to Willeke Van Eeckhoutte and Ireland, Multiple Sclerosis & Me with appropriate and specific direction to the original content.

 

Under-caffeinated writer. Please help.

Coffee imageAh ladies and lads, you know I can be a bit kooky at times; hell, I can even get a little annoyed as well when things don’t go my way. I therefore won’t do it on this page.

At all.

Where others might ask for a pint, I don’t drink alcohol, so I won’t fall down on my knees begging you.

I also won’t fall down on my knees asking you for a fag, as I don’t smoke. If others want to turn their fine, red lungs to utter blackness, the true colour of hell… their lungs, not mine. Continue reading

No end to trigeminal neuralgia

b61ee3bf0e7ee52d0332a9f29cdf1143Oh dear.

It was indeed that time again.

“When I’m good, I’m really good, but when I’m bad, I’m even better,” Mae West once said. Now I don’t know much about Mae West, but I see her as an all-out cowgirl, slinging guns left, right and centre. In that respect, Mae, girl power, and let us all be great when we’re good, and even worse when we’re bad!

While I’m sitting here, typing fine long sentences, I’m almost giddy of pain, and the left side of my face feels like it’s being pulled way west in the direction of the Atlantic Ocean. My left eye feel like closing up shop for a week or two, and my brain is slowly being stir-fried. Yes, that is what trigeminal neuralgia feels like.

It’s not always like this though, as trigeminal pain can translate in different ways. It can feel like the ice bucket challenge, an earthquake, and monsoons as well as just… Mae West’s “when I’m bad, I’m even better.”

Silly girl, of course (me, not Mae West). I’m an idiot. Here I am, telling people to take care of themselves, telling them to take some time off from their MS as it’ll be there long enough, but do I listen to myself? Continue reading

Brain facts

history-of-multiple-sclerosis-01-pg-full

BrainFacts.org

BrainFacts.org – Neuromyths

SharpBrains

(If you find a website you think might or should be added here, please email me on billie@ireland-ms.com)

© WVE and Ireland, MS and Me, 2011-2014.Unauthorised use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to WVE and Ireland, MS and Me with appropriate and specific direction to the original content.

 

Neurology

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Journal of Neurology & Neurosurgery

Journalwatch Neurology

Netmed Neurology

Neurology Care

Neuronetwork Ireland

Neuroscience Ireland

(If you find a website you think might or should be added here, please email me on billie@ireland-ms.com)

© WVE and Ireland, MS and Me, 2011-2014.Unauthorised use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to WVE and Ireland, MS and Me with appropriate and specific direction to the original content.

Specialised medical websites

coloring-page-medical-symbol-tt24724 (1)

National Centre for Biotechnology Information

National Institute of Neurologic Disorders and Stroke

PubMed

(If you find a website you think might or should be added here, please email me on billie@ireland-ms.com)

© WVE and Ireland, MS and Me, 2011-2014.Unauthorised use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to WVE and Ireland, MS and Me with appropriate and specific direction to the original content.

Wheelchair?

disability-is-not-inability-700x280

Wheelchair.

Not a dirty word.

Or a scary word.

Or a tool for lazy people.

It’s much more, and means even more to those having found their freedom again.

Waking up during the night with a funny, tingling feeling in one of my legs. Thinking nothing of it, I go back to bed. Continue reading

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