Tag Archives: Multiple Sclerosis

Positive MS News: July 2014

A lot of news on the research front in July, which can only be good. It’s a joy, relief as well as hope that one of those research projects or trials might lead to longer periods of remission, and perhaps a return to lesser disability for those with primary and secondary forms of multiple sclerosis. So let’s keep fingers, toes, eye lashes and anything else crossed that can be crossed. A lot of people with severe MS deserve at least that. Remember, 2.3 million people with MS globally is staggering. It doesn’t have to be that way, though.

CFT0728_01435936667Research results

  1. Human Stem Cells Effectively Treat Multiple Sclerosis in Mice Models
    HCPLive – Embryonic stem cells are a potentially viable treatment option for multiple sclerosis (MS), according to research published online in Stem Cell Reports.
  2. Innovative research tool pinpoints potential therapies for multiple sclerosis
    Medical Xpress – Demyelination by MS. The CD68 colored tissue shows several macrophages in the area of the lesion. Original scale 1:100.
  3. Melanocortin Receptor Agonist can Treat Multiple Sclerosis
    HCPLive – FRIDAY, July 11, 2014 (HealthDay News) — Melanocortin receptor type 3 (MC3) has protective properties for joint and periodontal tissues.
  4. Researchers discover neuroprotective role of immune cell
    Medical Xpress – A type of immune cell widely believed to exacerbate chronic adult brain diseases, such as Alzheimer’s disease and multiple sclerosis (MS).
  5. UCSF scientists identify drugs that could help MS patients
    SFGate – In patients with multiple sclerosis, the immune system attacks myelin, the insulation that surrounds the wire-like connections between nerve cells.
  6. Scientists 1 step closer to cell therapy for multiple sclerosis patients
    Medical Xpress – In multiple sclerosis, the protective covering of axons, called myelin, becomes damaged and lost.

Continue reading

Wonder Woman Syndrome

pace-yourself2I’ve done it again. Minus the suit, mind you.

Rhetoric aside, picking my battles wisely is not something I do easily. Not only that, changing your lifestyle and striving for quality of life is not as easy as it sounds. It’s as much a mental, emotional and physical struggle to sustain quality of life. Continue reading

Kids? Not right now, please…

Children and multiple sclerosis? Although life was good in my last relationship, I secretly decided that having children would probably not be on my list of things to do. Not because of the lack of love, but because I didn’t want to pass on my illness to my future son or daughter. When we eventually talked about possibly mixing my illness with his screaming babies and hectic lifestyle, I realised that in quiet, I made the right decision.

Being broody comes with being female, and despite my decision, I still get broody sometimes. If it wasn’t for MS, I absolutely would’ve wanted children. One of the few nice things about being chronically ill and being childless is however, when looking after children of friends and family, you can give their children back at night. I get to go back to my own cool, dark bedroom in my quiet house, and I have my broodiness resolved for a while. Continue reading

In a while!

A new post will be published here before Friday. Warm weather and a family visit joined my MS relapse which means time has been filled with lots of rest and relaxation. Looking forward now to writing again!

write-with-style

© WVE and Ireland, MS and Me, 2011-2014. Unauthorised use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to WVE and Ireland, MS and Me with appropriate and specific direction to the original content.

The social swing of life

social-mediaLife isn’t viewed through our own two eyes anymore. We now let a smartphone be the first witness of things happening around us. We learn about other people’s lives, not by talking to, or observing them from a sun-drenched patio with a cool drink in front of us. Instead, we check out our friends’ Facebook pages and read their blogs. Direct communication seems a thing of the past. Continue reading

National Annual Awards 2014

It’s the season of nominations, so why add your vote in MS Ireland’s MS Person of the Year, MS Carer/Helper of the Year or MS Volunteer of the Year for the National Annual Awards 2014?

As you already know, I applaud Multiple Sclerosis Ireland for the hard work they put into helping those with MS, and fight for those who care for them. The society has received many mentions in my blog here, and for good reason. From the day of my diagnosis, now 9 year ago, I have had the best people listening to my initial denial to now being supported in raising my voice for other people with MS today.

Many people have had the chance of being part of a very vibrant volunteer network, or have been helped by them. For those volunteers, carers, helpers or a person with MS, the National Annual Awards have been created: “Our annual National Awards recognise those who through their dedication and selflessness play a significant role in the lives of others and the progress of the Society.”

So, if you’re a member of a Branch, an individual member or staff, and you know a member who you feel deserve recognition, please nominate your special person in one of the three categories:

The closing date for nominations is Friday, August 1st 2014.

For more details about the awards, contact Alice McKeon on alicem@ms-society.ie or on (01) 6781608 or drop in to your local Regional Office to pick up a form.

The 2014 awards will be presented at the Annual General Meeting in September.

© WVE and Ireland, MS and Me, 2011-2014. Unauthorised use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to WVE and Ireland, MS and Me with appropriate and specific direction to the original content.

Game, set, relapse!

“Dwell on the beauty of life.
Watch the stars, and see
yourself running with them.”
(Marcus Aurelius, Meditations)

There’s no hiding when a MS relapse is in town. It arrived on my doorstep about 5 days ago, warts and all, and I’m still trying to hide. I could give you the nitty gritty technical bit of it, but I fear it wouldn’t read like a Booker prize novel. And that, is something I aspire to one day, just not today. Continue reading

Not my face!

162974080234952360_x4ok1y8s_fSomeone once said “Babe, you may have MS, but you’re still sexy. Never forget that.”

Shortly after my diagnosis, my then-boyfriend uttered those very words. He must have seen me look at myself in a critical manner one too many times since returning home from a two-week stint in hospital, wondering if ‘MS’ really was written on my face.

Even though I don’t usually give in to superficial words like this, and don’t necessarily follow fashion to a T, hearing his words did wonders for my mind. The relationship didn’t stand the test of time, but sometimes I still say those lines to myself. Nine years ago, his words became a quick-fix mantra to pick myself up when I needed a boost. Continue reading

Blogging anniversary!

new headerBlogging 3 years today.

283 posts.

36000 hits.

949 followers.

1 Blog Awards Ireland 2013 nomination.

1 Blog Awards Ireland 2013 shortlisted in the Best Personal Blog category.

Thank you!

writers-block1© WVE and Ireland, MS and Me, 2011-2014. Unauthorised use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to WVE and Ireland, MS and Me with appropriate and specific direction to the original content.

Defined by myself, not my illness

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My name is Billie. I am a daughter, sister, aunt, niece, sister-in-law, cousin, granddaughter and simply a part of a special family.

I am, however, also an individual.

I am passionate, caring, goofy, alternative, tenacious and inquisitive.

Continue reading

Rewind, Pause, Forward, Play

Life’s been very busy lately, hence no new posts for a while. It’ll be empty for another week or so, but I absolutely AM still writing away.

Right now so, it’s all about rewind, pause, forward and play!

images© WVE and Ireland, MS and Me, 2011-2014. Unauthorised use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to WVE and Ireland, MS and Me with appropriate and specific direction to the original content.

MS Trust 21 Challenge

The MS Trust posed me a great question, asking me to help spread a word about the UK Awareness Week that runs from April 28th to May 4th. I do love a challenge,  so anyway I can help from my keyboard, I happily attack!

So, do you feel like a challenge? How about a fun way to raise awareness regarding MS? Check out the UK’s MS Trust website to be inspired, take a stance and do something worthwhile. MS Trust’s Awareness Week and we want you involved!

The trust was set up 21 years ago, and is celebrating this by inviting everyone to join their 21 day challenge and sponsor, shout and help others spread the word about MS Trust’s Awareness Week from April 28th to May 4th. Continue reading

H.O.P.E. (Hold On, Pain Ends)

“The best way to not feel hopeless is to get up and do something.
Don’t wait for good things to happen to you.
If you go out and make some good things happen,
you will fill the world with hope,
you will fill yourself with hope.”
(Barack Obama)

It has been a bit of a hectic, but a great time to write lately. Two bits of fantastic news came my way in regards to my writing, and I’ve been over the moon since.

Continue reading

MS Ireland

988356_660413093979334_470388280_nIt’s not the first time I sit back at night and go over past moments that captured me, inspired me and willed me forwards to do more, much more.

As societies go, there’s a lot of goodwill in the MS Ireland society, but also hard facts that tell others that this is a group of outstanding people working for people with MS.

Focused on advocacy, support, service provision, information, education as well as research and spreading awareness, you simply cannot find a better informed charity. Continue reading

Monday Madness

new-monday_madness-980x360“Without knowing the cause of illness,
any treatment must be considered a guess.”
(Richard Diaz)

OjzzIkxgLoOE8mZL8uR7XUwivan1HXSD9LBGTHWF8PnXr586lHFhZ6D4wQDq66Yx© WVE and Ireland, MS and Me, 2011-2014. Unauthorised use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to WVE and Ireland, MS and Me with appropriate and specific direction to the original content.

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