Since writing my article about depression five days ago, and my mum’s 7-day visit to Ireland, I feel a shift has taken place in my mind.
I am not 100% there yet, but I am well on my way to finding uncompromising resolve again. Many grand and tiny gestures have contributed over the last 4-5 weeks, and are still willing me forward today. Of course, the backing of friends and family, as well as my medical team definitely helped.
Most of all, though, I had once again come to the realisation that I unfortunately need more sleep than the average, healthy person. At this stage so, I must start considering my continuous fights against tiredness and “forgetfulness” about needing a lot of sleep, as a pure character flaw. Continue reading
Once again, a lot of research news was published online, with the best headline saying “54 New MS Research Projects to Receive Millions of Dollars in Funding.” In my view, I can only jump up and down like a child at Christmas reading about new research and positive trial results. Even if or when we’re struggling with our illness, we know that lots is happening to help us forward in life.
So please, enjoy the list with research & clinical trial news, updates on current medication and business & general news. Continue reading
Three weeks ago, Mental Health Awareness Week graced Ireland, hoping to shine a light on the different kinds of mental illness some people live with. If you spent time on Facebook or other social media during that time, you probably saw pictures float by saying, “Depression isn’t a sign of weakness, it’s a sign you’ve been trying to remain strong for too long.”
While everyone goes through a short time of feeling low at some stage in his or her life, feeling down can also be a symptom of an illness other than depression, like multiple sclerosis. Continue reading
A milestone like no other. A curious, strange one indeed.
Ten years of living with MS.
In fact, ten years and one week.
Reality suddenly became a very different kind of living. As strange as it sounds, it became a more fulfilled life, a happier one also. Continue reading
It has been a big and very busy September for researchers, clinical trials and pharmaceutical companies. Early this month, the Joint ACTRIMS/ECTRIMS Meeting took place in Boston. For more, please check the extensive website of the conference. Continue reading
Building further upon my previous post, “What we don’t know,” let’s open the “Surprise!” book of MS. Before you read any further though, I do want to say that I do not have below symptoms all at once, or on the same day. Some are more present than others, or less or more intense. Some happen once a week, others perhaps more.
You probably know by now that my main symptoms are still ridiculously strong fatigue and similar facial pain, so what you will find below is more or less just a slight blip on the radar in the scheme of things. Unless I fall off the staircase of course, which would be rather erm… well… just silly, n’est-ce pas? Continue reading
The MS community is well known for its willingness to talk about their illness. I myself might share more than others might, but that, of course, is a personal choice. Being from a family where I am the first one with MS, I almost constantly feel a need to share, teach and sometimes to explain some differences in opinion on how to live with MS. In that regard, I sometimes have MS things on my mind, but when I go online, I can’t see them discussed in chat rooms or forums.
Take for example brain atrophy. The first time I heard about atrophy was at a MS Patient conference in May. In the nine years of being diagnosed, never had I come across, and never did anyone talk to me about MSers having a faster-shrinking brain. To my very surprise, I therefore learned that in people with MS, brain volume is lost around three to five times faster than in healthy people. Continue reading
Interested in reading more? Check out the Featured On page on my blog with links to guide you!
Click for news on how MS fatigue may be linked to regional brain damage
© Willeke Van Eeckhoutte and Ireland, Multiple Sclerosis & Me, 2011-2014. Unauthorized use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to Willeke Van Eeckhoutte and Ireland, Multiple Sclerosis & Me with appropriate and specific direction to the original content.
Because not every country has a MS register yet, it is difficult getting exact figures about how many people have MS. This means that some figures are estimates only. While the numbers below (taken from different websites), may sound frightening, it’s important to focus on the good. Continue reading
Ah ladies and lads, you know I can be a bit kooky at times; hell, I can even get a little annoyed as well when things don’t go my way. I therefore won’t do it on this page. At all.
Where others might ask for the price of a pint, I don’t drink alcohol, so I won’t fall down on my knees begging you.
I also won’t fall down on my knees asking you for a donation of the price of a fag, as I don’t smoke. Continue reading